Since 2010, we have been providing assistance to cystic fibrosis patients. The main goal of the association is to protect the rights and legitimate interests of people with cystic fibrosis and their family members, to help solve the problems of treatment and prevention of the disease, social rehabilitation and adaptation of patients
Cystic fibrosis is a congenital hereditary disease in which the work of the exocrine glands is disturbed. The respiratory and digestive systems are the most affected by pathology.
The reasons for the development of cystic fibrosis are a violation of the structure of the synthesized protein – it becomes thick and viscous. Stagnation of mucus, an increase in sodium and chlorine in it lead to the fact that the epithelium of the glands of internal secretion begins to be replaced by connective tissue and decreases in size.
The result of this genetic defect is the accumulation of thick and sticky mucus in the respiratory, digestive and reproductive systems of the body. Another anomaly associated with this disorder is the increased salt content in the patient’s sweat.
24.04.2026
We received good news from the Public Union “Rare Diseases of Ukraine”: The Ministry of Health of Ukraine has updated the composition of the group of experts and specialists involved in the work of the Permanent Working Group of the Ministry of Health on sectoral support for procurement in specific areas. From now on, the group includes representatives of the Public Union “Rare Diseases of Ukraine”:
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04.04.2026
Dear colleagues, patients, parents, and caregivers of people with cystic fibrosis, I would like to share important news that continues our collective efforts to support those who are currently facing extremely difficult life circumstances. With the approval of GlobalGiving, the “Orphan Tits” Foundation (Orphanni Synytsi) will continue in 2026 its program supporting charitable projects aimed at helping orphan patients in Ukraine.
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26.03.2026
In the context of ongoing challenges faced by our country and the healthcare system of Ukraine, the Association continues to fulfill its mission: to provide support to patients and healthcare professionals, to contribute to improving the quality of medical care, and to represent the interests of the field in cooperation with government authorities, international organizations, and partner institutions.
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Our mission is to support sick patients and their families in the fight for a dignified and long life with this serious and incurable genetic disease. We are close to our patients, we want to provide them with comprehensive help, let them know that they are not alone, and hope that cystic fibrosis is not a death sentence.
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