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We empower, collaborate and advocate for people living with a rare disease.

In Ukraine, about 5% of the population is fighting against cystic fibrosis every day.

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NCO "ALL-UKRAINIAN ASSOCIATION FOR ASSISTANCE TO PATIENTS WITH cystic fibrosis"

Since 2010, we have been providing assistance to cystic fibrosis patients. The main goal of the association is to protect the rights and legitimate interests of people with cystic fibrosis and their family members, to help solve the problems of treatment and prevention of the disease, social rehabilitation and adaptation of patients

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WHAT IS CYSTIC FIBROSIS?

Cystic fibrosis is a congenital hereditary disease in which the work of the exocrine glands is disturbed. The respiratory and digestive systems are the most affected by pathology.

The reasons for the development of cystic fibrosis are a violation of the structure of the synthesized protein – it becomes thick and viscous. Stagnation of mucus, an increase in sodium and chlorine in it lead to the fact that the epithelium of the glands of internal secretion begins to be replaced by connective tissue and decreases in size.

The result of this genetic defect is the accumulation of thick and sticky mucus in the respiratory, digestive and reproductive systems of the body. Another anomaly associated with this disorder is the increased salt content in the patient’s sweat.

ACTUAL NEWS

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Ukraine at the 49th European Cystic Fibrosis Conference


War does not stop us. While Ukrainian defenders continue to hold the front line, Ukraine’s medical community continues its own fight — for health, access to treatment, and a dignified future for people living with cystic fibrosis. Below is a message from Larisa Voloshyna, President of the All-Ukrainian Association for Assistance to Patients with Cystic Fibrosis: “At the 49th European Cystic Fibrosis Conference in Lisbon, I had the honor of representing Ukraine together with our physicians and partners.

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ECFS 2026: New Horizons in Cystic Fibrosis Treatment


As part of the 49th European Cystic Fibrosis Conference (ECFS 2026), held in Lisbon, Portugal, from June 3–6, 2026, the Ukrainian delegation participated in several key scientific sessions. The delegation included Larisa Voloshyna, President of the All-Ukrainian Association for Assistance to Patients with Cystic Fibrosis, physicians Yuliia Ostapyshena and Mariia Polishchuk, as well as Ms. Nataliia, Ms. Anna, and Ms. Bohdana.

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49th EUROPEAN CYSTIC FIBROSIS CONFERENCE. LISBON, PORTUGAL


From June 3–6, the 49th European Cystic Fibrosis Conference (ECFS 2026) took place in Lisbon, Portugal. Reporting from the event is Larisa Voloshyna, President of the All-Ukrainian Association for Assistance to Patients with Cystic Fibrosis: "This conference is not only about science, cutting-edge research, and modern treatment approaches. It is about the people who work every day to ensure that patients with cystic fibrosis live longer, healthier lives and have access to the best possible treatment opportunities, regardless of the country they live in.

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Our mission is to support sick patients and their families in the fight for a dignified and long life with this serious and incurable genetic disease. We are close to our patients, we want to provide them with comprehensive help, let them know that they are not alone, and hope that cystic fibrosis is not a death sentence.

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