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Strengthening the representation of rare disease patients in the Ministry of Health

Charitable Projects Support Program 2026

Summarizing the results of the Association’s activities for the first quarter of 2026.

Interesting facts and updates about cystic fibrosis.

Ukraine at SEEC 2026: Doctors on What Matters Most

SOUTH EASTERN EUROPEAN CF CONFERENCE 2026

Alyona Alyona — the voice of rare disease patients in Ukraine.

International Rare Disease Day: “Beyond the Possible” ConferenceFebruary 27, 2026, Kyiv

Conference for Rare Disease Day

New Year’s Greetings for 2026!