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Strengthening the representation of rare disease patients in the Ministry of Health

Charitable Projects Support Program 2026

Summarizing the results of the Association’s activities for the first quarter of 2026.

Interesting facts and updates about cystic fibrosis.

Ukraine at SEEC 2026: Doctors on What Matters Most

Conference for Rare Disease Day

New Year’s Greetings for 2026!

The latest genetic tests of a medical drug in Italy for cystic fibrosis treatment in 2025–2026

The effect of Kaftrio (Trikafta) on liver problems in cystic fibrosis.

International Doctor’s Day 2025