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Alyona Alyona — the voice of rare disease patients in Ukraine.

International Rare Disease Day: “Beyond the Possible” ConferenceFebruary 27, 2026, Kyiv

Conference for Rare Disease Day

New Year’s Greetings for 2026!

When dreams come true, but habits remain

A Thank-You Message from the President Following the Conference

Tasty Calories: How to Gain Weight with Cystic Fibrosis — With Joy

Scientific and Practical Conference for European Cystic Fibrosis Day.

The latest genetic tests of a medical drug in Italy for cystic fibrosis treatment in 2025–2026

Implementation of the “Breath of Power” Project