04.04.2026
Dear colleagues, patients, parents, and caregivers of people with cystic fibrosis,
I would like to share important news that continues our collective efforts to support those who are currently facing extremely difficult life circumstances.
With the approval of GlobalGiving, the “Orphan Tits” Foundation (Orphanni Synytsi) will continue in 2026 its program supporting charitable projects aimed at helping orphan patients in Ukraine.
At the beginning of this spring, we received the second tranche of the sub-grant.
Thanks to this, we have already purchased professional inhalation devices:
Pari Boy Pro — 8 units
Pari Boy Classic — 3 units
These are not just devices — they are an opportunity to breathe, to live more steadily, and to receive support where it is needed most.
The inhalers will be provided to patients who are in extremely difficult conditions and cannot afford to purchase them on their own.
The first four inhalers will reach their recipients by the end of this week.
We will continue to work, support, and stand by those in need.
Because every life matters. Let us take care of one another and of Ukraine. 



Strengthening the representation of rare disease patients in the Ministry of Health
Charitable Projects Support Program 2026
Summarizing the results of the Association’s activities for the first quarter of 2026.
Interesting facts and updates about cystic fibrosis.
Ukraine at SEEC 2026: Doctors on What Matters Most
South Eastern European CF Conference 2026