01.08.2025
Cystic fibrosis is not just about medication, physiotherapy and regular visits to the doctor. It is about living every day with a disease that often goes unnoticed by those around you, but constantly affects your physical and emotional state. One of the biggest challenges for many patients is having to explain to others over and over again what cystic fibrosis is, why you cough, why you have a disability certificate, why it is difficult to gain weight or why sometimes you just don’t have enough energy.
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23.01.2025
Everyone who faces an incurable disease asks themselves the question: - How to live on? In an interview with Halyna Makukh, the president of the NGO “All-Ukrainian Association for Helping Patients with Cystic Fibrosis” Larysa Voloshyna and her daughters ...
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20.12.2024
We bring to your attention a recording of the webinar “Psychological Support and Independent Living”, which took place as part of the Orphan Patient School project, organized by the Public Association “Orphan Diseases of Ukraine” with the support of the Ukrainian-Danish Youth House. The speaker is Larisa Voloshyna, president of the All-Ukrainian Association for Helping Cystic Fibrosis Patients
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03.04.2024
Physiotherapy is an ongoing challenge in all centers around the world. This is especially noticeable in young people. So, the first remark: in order for physiotherapy to be effective, it must be carried out. In adults, the disease may present as a "typical" form. Individuals who fell ill in early childhood and survived to adulthood, patients with late manifestation and atypical form of the disease...
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