23.01.2025
Everyone who is faced with an incurable disease asks themselves the question:
– How can I continue to live?
In an іnterview with Halyna Makukh, president of the NGO “All-Ukrainian Association for Helping Patients with Cystic Fibrosis” Larysa Voloshyna and her daughters share their personal story of life with the genetic disease cystic fibrosis.
“It was a day when I had to make a difficult decision: my career or my daughter’s life? And later, the lives of all cystic fibrosis patients.”
Strengthening the representation of rare disease patients in the Ministry of Health
Charitable Projects Support Program 2026
Summarizing the results of the Association’s activities for the first quarter of 2026.
Interesting facts and updates about cystic fibrosis.
Ukraine at SEEC 2026: Doctors on What Matters Most
South Eastern European CF Conference 2026