23.01.2025
Everyone who is faced with an incurable disease asks themselves the question:
– How can I continue to live?
In an іnterview with Halyna Makukh, president of the NGO “All-Ukrainian Association for Helping Patients with Cystic Fibrosis” Larysa Voloshyna and her daughters share their personal story of life with the genetic disease cystic fibrosis.
“It was a day when I had to make a difficult decision: my career or my daughter’s life? And later, the lives of all cystic fibrosis patients.”
Marta Sheremet – Co-author of an International Publication
Ukraine at the 49th European Cystic Fibrosis Conference
ECFS 2026: New Horizons in Cystic Fibrosis Treatment
49th EUROPEAN CYSTIC FIBROSIS CONFERENCE. LISBON, PORTUGAL
Strengthening the representation of rare disease patients in the Ministry of Health
Charitable Projects Support Program 2026