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Innovative projects and activities

02.12.2024

Conference “Living with cystic fibrosis during war”

On November 29-30, the annual Scientific and Practical Conference dedicated to the European Cystic Fibrosis Day “Life with Cystic Fibrosis during the War” was held in Lviv. You can view the recording by following the link:

Conference “Living with Cystic Fibrosis at War” Day 1

Conference “Living with Cystic Fibrosis at War” Day 2

The conference was attended by the Heads of regional centers of Ukraine and their deputies, representatives of the board of the All-Ukrainian Association of Aid to Cystic Fibrosis patients, doctors treating adult and pediatric patients from Ukraine.

The conference program was rich and useful, an incredibly sincere atmosphere in the hall, live communication and knowledge gained by the participants will remain in the memory and will spread to a wide audience through viewing the recording.

There were informative reports from the employee of the Ministry of Health of Ukraine, Head of the Department for Policy Formation in the Field of the Medical Guarantees and Medical Support Program of the Department of Medical Services, Yevgeny Honchar, and the Deputy General Director for Client Experience Management and International Cooperation of the State Enterprise of the Ministry of Health, Kateryna Nekrasova. After the speech, parents could ask questions about the provision of their regions and the distribution of medicines under state procurement. The reports of experienced doctors who work with our patients during the war were interesting and informative for the patient community.

After the reports, discussions and questions and answers continued for a long time. Special thanks to the President of the NGO “All-Ukrainian Association for Helping Cystic Fibrosis Patients” Larisa Voloshyna for being the host and bringing together all the conference participants in the beautiful city of Lviv.

Also, words of gratitude to the Armed Forces of Ukraine for their protection and the opportunity to hold this event in such a difficult time!

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