Conference for Rare Disease Day.

Every year, on the last day of February, the world unites to draw attention to people living with rare diseases.
On February 27, we invite you to a powerful conference dedicated to current issues of orphan medicine in Ukraine. The event will be held in a hybrid format — offline in Kyiv and online for everyone who cannot attend in person.

In focus:
— access to treatment for patients with rare diseases.
— development of the orphan care system in Ukraine.
— international cooperation during wartime.

These issues cannot be postponed. Thousands of patients and their families need systemic solutions today — and how quickly they appear depends on our joint efforts.

We invite doctors, scientists, representatives of patient organizations, officials, and everyone who cares about this topic: your presence and your voice matter.

Please confirm your participation via online registration 👇

Register