Interesting facts and updates about cystic fibrosis.

Fascinating and Educational Facts from the World of Cystic Fibrosis:

• A book has been published that describes the journey from the description of the first cases of cystic fibrosis in 1930 to modulator therapy “Breath from Salt” 👉👉 over 100 years patients and parents have made a breakthrough❗️
• In patients with CF who ended up in prison, body mass index and respiratory indicators improved. 👉👉 A daily schedule and discipline matter❗️

• The importance of inhalations with saline solution was discovered by a doctor from Australia, who noticed better airway condition in those patients who regularly surfed. 👉👉 So either regular surfing or saline inhalations❗️

• A patient with cystic fibrosis from Canada, Lisa Bentley, won 11 Ironman competitions 👉👉 perseverance and acceptance of one’s situation are our blessing❗️ link to her story

• Unlike us, our ancestors on average walked or ran 10 km per day 👉👉 we are programmed for movement. Get on that bike❗️

• Relatives and patients from the regions of Transcaucasia dream about access to modulators 👉👉 Ukrainian patients are lucky in this regard❗️

Thank you to Halyna Vasylivna Makukh (geneticist, Doctor of Biological Sciences, Head of the Genetic Laboratory and the Regional Center for Neonatal Screening) for the interesting information.