14.04.2025
To your attention “Guidelines for the initiation and termination of cystic fibrosis therapy using modulators of the cystic fibrosis transmembrane conductance regulator – CFTR”, which was presented by doctors from the Center for Orphan Diseases and Gene Therapy of the National Research and Development Center “Okhmatdyt” of the Ministry of Health of Ukraine.
Important information in Ukrainian for everyone who starts modulatory therapy, as well as clear recommendations on monitoring, examinations and tests of patients during the first year of treatment, adverse reactions and criteria for discontinuation of treatment.
Strengthening the representation of rare disease patients in the Ministry of Health
Charitable Projects Support Program 2026
Summarizing the results of the Association’s activities for the first quarter of 2026.
Interesting facts and updates about cystic fibrosis.
Ukraine at SEEC 2026: Doctors on What Matters Most
South Eastern European CF Conference 2026