icons icons icons
Medicine

03.06.2025

Officially approved: Zaporizhia Regional Hospital became a Reference Orphan Center

We are pleased to announce that today another Reference Orphan Center in Ukraine was officially approved – KNP “Zaporizhzhya Regional Clinical Hospital”! ⠀

The Center received recognition in three areas:
1. Cystic fibrosis (CF).
2. Autoimmune diseases (JURA).
3. Pituitary dwarfism. ⠀

In extremely difficult conditions of war, doctors not only survive – they develop, train, participate in national and international projects, save lives, diagnose, treat, support. ⠀

A special pride is the multidisciplinary team, which includes psychologists who help patients and their families maintain psychological stability, overcome fear, loss, PTSD and anxiety.

Sincere gratitude to everyone who made this decision possible:

  • Tetiana Ivanivna Okul
  • Olena Vasylivna Slepyan
  • Olena Ivanivna Rudova
  • The Working Group of the Ministry of Health of Ukraine and the leaders of patient organizations
  • The team of the Zaporizhia Regional Clinical Hospital
  • Zaporizhzhya OVA ⠀

We thank everyone involved in this important cooperation. We congratulate the team on the recognition and the beginning of a new stage!

POPULAR NEWS

image

Strengthening the representation of rare disease patients in the Ministry of Health

image

Charitable Projects Support Program 2026

image

Summarizing the results of the Association’s activities for the first quarter of 2026.

image

Interesting facts and updates about cystic fibrosis.

image

Ukraine at SEEC 2026: Doctors on What Matters Most

image

South Eastern European CF Conference 2026